LGBTQIA+ people living with Parkinson’s experience higher rates of depression and anxiety, a new study has revealed.
Respondents also reported higher levels of disability and loneliness compared to their cisgender, heterosexual peers, the ‘Parkinson’s Research With Inclusion, Diversity, And Equity (Pride)’ study found.
The findings are part of a research project carried out by Rainbows of Aging Team at The University of Nevada, Las Vegas. It explored the issues faced by LGBTQIA+ people living with Parkinson’s and their caregivers.
The research, based on surveys and interviews with healthcare providers, LGBTQ+ and non LGBTQ+ people living with Parkinson’s and their caregivers, was carried out between 2023-2025. The project aims to identify ways to promote better and more inclusive healthcare experiences for all.
LGBT+ Parkinson’s community – need for better care
A range of healthcare providers were asked about their beliefs and perceptions of LGBTQ+ patients as part of the study, from fields including neurology, physical therapy and occupational therapy. Some 42% of those surveyed reported a lack of staff training about LGBT health issues.
It also includes interviews with caregivers, who revealed stark differences between urban and rural areas in terms of LGBTQ+ acceptance, access to services and resources, and experiences of discrimination or homophobia.
Dr. Jason Flatt, who led the research, said: “This is one of the first studies to focus on members of the LGBTQ+ community living with Parkinson’s disease, along with their care partners.
“Our findings reveal that LGBTQ+ adults living with Parkinson’s disease experienced heightened challenges related to both mental and physical health, including increased rates of anxiety and disability.
“Additionally, our findings point to the need for enhanced social support, as many LGBTQ+ participants reported concerns around social isolation and loneliness.”
Parkinson’s Europe Pride campaign
The news comes after the launch of Parkinson’s Europe’s Pride campaign this June, to mark Pride Month. As well as the creation of a Pride-themed logo, the campaign included articles and a new dedicated website section to support and raise awareness of Parkinson’s LGBTQIA+ community.
Parkinson’s Europe President Josefa Domingos welcomed the study, calling for a more inclusive approach to ‘true care’.
“We know that loneliness, anxiety, and depression are common among people living with Parkinson’s. These experiences can be even more overwhelming when individuals don’t feel safe, seen, or truly included. For LGBTQIA+ individuals living with Parkinson’s, these feelings can become even more intense, often feeling invisible or isolated,” she said.
“As a Parkinson’s community, we must do better. True care goes beyond treating symptoms. It means seeing and supporting the whole person with dignity, inclusion, and compassion every step of the way.”
