We’re frequently asked for recommendations of Parkinson’s books and magazines – and as a European organisation, we’re always on the lookout for publications in various languages to suit our very multilingual community. Here’s a roundup of some of the more recently published Parkinson’s books, magazine and guides in seven different languages, from Czech to Spanish, Portuguese to Dutch, and beyond.
Czech Parkinson’s books
Kako Ziveti S Parkinsonovo Boleznijo Prirocnik [How to Live with Parkinson’s Disease Handbook] by the Trepetlika Association
This 202-page book contains 26 articles written by Slovenian experts about the disease and its treatment.
Download for free from the Trepetlika Association website
Parkinson od nemocné nejen pro nemocné, aneb co je užitečné vědět [Parkinson’s tips by a patient] by Romana Skala-Rosenbaum
Skala-Rosenbaum has been living with Parkinson’s for more than 20 years, and this book aims to show how individual symptoms can affect a person’s activities and to provide tips on how to manage them.
Email Parkinson-Help Z.S. at [email protected] to be emailed a free pdf copy of the book
Dutch Parkinson’s books
Wendy’s Parkinson Journey Geniet van het leven [Wendy’s Parkinson Journey: Enjoy life]
Written by Wendy van Wijk-Lugthart, a woman with Parkinson’s, this online magazine – also available in English – comes out three times a year. With a focus on positivity and sharing tips on how to live well with the condition, it contains interviews with people with Parkinson’s, as well as caregivers and healthcare professionals. It costs €4,15 per magazine or €10 for an annual online subscription for three magazines.
Read Wendy’s Parkinson Journey: Geniet van het leven in Dutch
Read Wendy’s Parkinson Journey: Enjoy Life in English
In Her Shoes by Annelien Oosterbaan
The YOPD author and senior researcher at Radbouc University Medical Centre in the Netherlands has written a book about how Parkinson’s affects women.
Download for free from the Parkinsonisme Vereniging website.
IK Beef Dus Ik Leef [I Tremble So I Live] by Kees de Bot and Marjolijn Verspoor
In this 66-page book, de Bot and Verspoor provide an insight into the daily life of a person with Parkinson’s and his partner. Neurologist A.A. van der Plaas called it: “Very entertaining and highly recommended.”
Buy IK Beef Dus Ik Leef for €12.99 from Abyssjin Publishers
English Parkinson’s books
Detours Through the Parkinsonian Brain by Marina Noordegraaf
A book of tips for people with Parkinson’s. Also available in Dutch.
Parkinson’s: How to Reduce Symptoms Through Exercise by Kristine Meldrum, Jay Alberts, PhD and Daniel M Corcos, PhD.
With a foreword by Professor Baastian R. Bloem, this book is designed to help anyone with Parkinson’s wanting to incorporate exercise into their daily life to reduce their symptoms.
Buy the book for £19.77 from Amazon
Battling Parkinson’s Disease: A Carer’s Journey of Learning, Hope and Despair by Angelika Pathak
In this self-published memoir, Angelika Pathak tells her story of caring for her husband with Parkinson’s, who was diagnosed four years before his death in 2019.
Buy a Kindle edition of the ebook for £3.50 from Amazon
Reprogramming the Brain by Benjamin Stecher and Alfonso Fasano
Having grown up in Canada, 39-year-old Stecher was 29 when he was diagnosed with Young Onset Parkinson’s. After his symptoms became unmanageable with medication, he had Deep Brain Stimulation in June 2021, and by taking part in medical technology company Medtronic’s ADAPT-PD (Adaptive DBS Algorithm for Personalised Therapy in Parkinson’s Disease) trial, became the first patient in a North America trial to use the adaptive setting of one of the latest DBS devices.
He has now written a new Parkinson’s book, Reprogramming the Brain, with his clinician, Dr Alfonso Fasano, detailing how they came to that decision after months of adjusting his medication and the settings on his deep brain stimulator, and what happened after that. Published on 30 March 2024, this new Parkinson’s book is also a guide to DBS treatment and the future of this technology.
Read our full interview with Ben Stecher
Reprogramming the Brain by Benjamin Stecher and Alfonso Fasano will be published by Springer, on 30 March 2024, priced £19.99
French Parkinson’s books
Nutrition et maladie de Parkinson [Nutrition and Parkinson’s disease] by France Parkinson association
Developed with people living with Parkinson’s and health professionals, speech therapists and dieticians, France Parkinson’s booklet Nutrition et maladie de Parkinson hopes to provide better understanding of nutrition and the condition. It explains digestion and how symptoms can influence nutrition and vice versa.
Buy for 16,00€ direct from the France Parkinson shop
German
Parkinson Schweiz Journal
Every three months, Parkinson Schweiz publishes its Journal, a downloadable magazine on various subjects including nutrition, smart tech, the need for healthcare reform and more.
Buy the Journal from Parkinson Schweiz – free for members, or CHF8 for non-members
Portuguese
Enquanto Correr Há Esperança! [As Long As We Run, There is Hope] by Marco Serrabulho
Winner of an Editor’s Choice prize for best non-fiction book of 2023, this book details Serrabulho’s struggles as a YOPD sufferer who was diagnosed 14 years ago at the age of 34. In it, he talks about how his lifestyle – and especially running – has helped him keep the condition under control. It is also a practical guide to help the recently diagnosed. Serrabulho says: “It’s a book about hope, resilience, and showing that Parkinson’s and happiness aren’t opposing things in life.”
Buy the Kindle edition on Amazon
Spanish
Libro Bianco del Parkinson en Espana [Parkinson’s White Paper in Spain] by the Spanish Parkinson’s Federation
Published last year, this document represents a detailed analysis of the current socio-health context of Parkinson’s focusing on those who live with the disease in Spain and their various experiences.
If you’ve got any recommendations of Parkinson’s books, email us at [email protected]
