In the final part of our series profiling the bloggers supporting the World Parkinson Congress (WPC) 2019, we talk to US blogger Garry Ballenger. He reflects on his favourite moments from past WPC events, connecting with other ‘Parkies’ – and why people in Parkinson’s community should be saying ‘yes’ to everything
Describe yourself in a sentence.
I am living well with Parkinson’s and I am interested in life because the world is fascinating.
Do you have a particular audience in mind when you’re writing?
To be honest, I mainly write for myself as I find it really therapeutic. Otherwise, I like other ‘Parkies’ – as well as my friends and family – to read my blog as it’s nice to share my experience with them.
Is there an aspect of Parkinson’s that you’re most passionate about?
I want people to know that we do not suffer from Parkinson’s, we live with it – and live darn well I might add. For me, living well means getting out in the world. I do that by leading my Parkinson’s support group and throwing myself into everything I can.
How widely read is your blog and in which countries?
I do not have much of an audience at the moment, but I hope to grow it!
Talk us through your routine: when do you find time to blog?
I usually only write in the mornings, first thing. In general, I am more of a reader than a writer, but I do try and write when I can.
What physical challenges do you face in writing and do you use any technology to support you?
I like typing because speech is such an effort for me now. When I’m typing I can get my precise meaning out through written text. My hands are fine so typing isn’t a big problem for me, especially as I’ve had deep brain stimulation. I had that done in 2003 and it has helped me tremendously. I can’t put my socks on without it. It was a life changer!