In the eleventh in our series profiling the bloggers supporting the World Parkinson Congress 2019, we talk to Japanese blogger Tamami Nose. She discusses the importance of speaking openly about the condition, fitting blogging in between hula lessons – and how Parkinson’s has expanded her world
Can you describe yourself in one sentence?
Since being diagnosed with Parkinson’s, my world has expanded and I believe I have a stronger spirit – although I am still very shy!
Do you have a particular audience in mind when you’re writing about the WPC2019?
I started writing for both English and Japanese audiences who had never been to Kyoto, Japan, but I found writing in two languages quite difficult. For that reason, I now write solely for Japanese readers who need information.
Is there an aspect of Parkinson’s that you’re most passionate about?
I want people with Parkinson’s to continue having a reason to live, to have an objective in life – and to have a strong spirit.
Which of your posts has attracted the most interest from your readers?
A seminar called ‘Work with Parkinson’s’ was really well received.
Talk us through your routine: when do you find time to blog?
I get up around 5:30 JST, usually before my alarm goes off as I have trouble sleeping. I take a bath, which helps relieve the numbness in my arms and then leave for work around 7:30 JST.
My real battle starts on the train, on my way into the office. By the time I get home at 8:00 JST, I’m a little too tired to do anything – so I’ll just dive into bed.
On the weekends I go to hula (Hawaiian dance) lessons. I also visit various small Parkinson’s organisations where I meet others and hold seminars.
Having such a busy schedule means I often struggle to find time to blog – but I know I’m making excuses!